Oh, dear. I'm so sorry to hear this.
And please don't think me insensitive if I put this to you this way: Welcome to parenthood.
The fact is, we all have things we passed to our children that we feel bad about, even if it's just small eyes or frizzy hair.
My 4 year old has developmental delays. Did something in my family or my husband's family's brain chemistry go wrong somewhere along the line, and this is the result? We don't know, and we'll never know. Your little sweetie could have had NF without you having it. She could have had any number of issues that are brand new to her. You never know-there are no guarantees with children.
Don't blame yourself, please! And don't feel guilty. This may not even be NF. It may be birthmarks. And if it is NF, you sound like you're ready to handle it in the best possible way. That's all we can do.
While I was pregnant with Morgan, I met a woman in the waiting room of my gyno's office. Her daughter had polydactyly. Where the hands and feet are flippers?
Clearly, the mom didn't have this condition. Who knows why the little girl had it. Point is, anything can happen with children. Seeing her just made me realize that no matter what, your children are your children and you love them, and blaming yourself or feeling bad doesn't help. Doesn't make things better for your kids, and only makes you feel worse.
Stay strong, and we'll all hope for some good news.
