My condolences Ksand, I'm so sorry to hear it. If there is anything we can do to support you and your family, let us know. Sadly that's a risk factor for EDS so I'm too familiar with it.
I also realised I hadn't commented in this thread in a while, so 5 from me...
1. I started swimming/doing aquafit last month. It's really helped my mood quite significantly, and I can feel myself slowly getting stronger.
2. Husband ordered a powerchair for me so that we can finally not be limited by my terrible feet and hips in where we go. Every decision for the last many years was made based on how much walking would have to be done, now I don't have to worry! It should be here soon. Purple and neon yellow accents.
3. Going to be working on a charity album, hoping it goes well!
4. My cat loves windy days like this. My body does not. Quite severe migraine and joint pain the last 2 days, can even feel when wind gusts are coming.
5. Gym is great, but I only feel safe going first thing in the morning so I've also become a morning person. I like kids, but you can't wear masks swimming so I don't want to share a pool with them right now. They do have CO2 monitors and have been keeping it ventilated at least, and I wear my mask in the changing rooms.