Worse Than An IA

princesslemons, my GP refers me for vitamin blood tests once a year and it's usually something I can get done without an appointment at a local hospital and no waiting for specialist for weeks.

Why not ask your GP to give you a referral too? That way you'll feel like some progress is being made while you wait for the neurological appointment.

princesslemons, my GP refers me for vitamin blood tests once a year and it's usually something I can get done without an appointment at a local hospital and no waiting for specialist for weeks.

Why not ask your GP to give you a referral too? That way you'll feel like some progress is being made while you wait for the neurological appointment.

I was thinking of waiting until Thursday to do that, so that I have my normal doctor. Plus the appt. is already made. Do you think I should do it sooner?

I was thinking of waiting until Thursday to do that, so that I have my normal doctor. Plus the appt. is already made. Do you think I should do it sooner?

What can it hurt to ask, you know?

What can it hurt to ask, you know?

I just feel like I'm pestering my local doctors. I've been in twice in 3 days already... I feel weird going back twice in a day. And then if I waited until next week, I may as well just see them on Thursday.

ETA: the receptionists DEFINITELY make you feel like a pest as well 

I just feel like I'm pestering my local doctors. I've been in twice in 3 days already... I feel weird going back twice in a day. And then if I waited until next week, I may as well just see them on Thursday.

On one hand, I definitely get you with feeling like you're pestering. On the other -- if you won't advocate for your health, who will? I still think you're a long way away from the GPs thinking you're one of "those" patients enough for  it to effect your care in the future.

And they are allowed to say no.

ETA: Maybe that's something they won't even make you see a doctor for -- maybe a GP can just leave it for you at reception since you already saw him/her today.

On one hand, I definitely get you with feeling like you're pestering. On the other -- if you won't advocate for your health, who will? I still think you're a long way away from the GPs thinking you're one of "those" patients enough for  it to effect your care in the future.

And they are allowed to say no.

ETA: Maybe that's something they won't even make you see a doctor for -- maybe a GP can just leave it for you at reception since you already saw him/her today.

This message swayed me to call But they said they won't be able to get me in until the 11th! My next appointment is the 3rd. So I think I'll stick with that... It's a shame. I'd really like to get that out of the way.

Oh well, I'm sorry -- but at least you tried.

Still, even when you go on the 3rd, and they order it then, you'll at least be exploring some other possibilities while you're waiting for the specialist.

I hope in the end whatever happens, it is all resolved quickly and painlessly and you're healthy once more.

Oh well, I'm sorry -- but at least you tried.

Still, even when you go on the 3rd, and they order it then, you'll at least be exploring some other possibilities while you're waiting for the specialist.

I hope in the end whatever happens, it is all resolved quickly and painlessly and you're healthy once more.

Thanks mort  Do you think it is wise to start taking the B12? will it affect the blood test when I get it?

My Birthday is the 5th. The first one I get to spend with Vincent in the nearly 7 years we've been together. I wish this could be resolved before that. He has things planned, and I just want to enjoy myself without having this huge thing in the back of my mind... *sigh*

So it's a week on since my readmission, and despite having huge doses several times a day of the most powerful antiobiotics, antivirals, and antifungals known to mankind, I'm still getting daily fevers and headaches. and they're still not any closer to a diagnosis. The doctors said this morning if I get a fever again today, they may send me for an MRI and full body scan to see if they can find an infection anywhere and barring that, I might have to get another lumbar puncture, which I'd really rather avoid since I'm due for a bone marrow biopsy next week anyway and either on their own is enough to make my back really sore for the better part of a week, so together, I might as well be an invalid...

Anyone else get any news on their diagnoses?

So it's a week on since my readmission, and despite having huge doses several times a day of the most powerful antiobiotics, antivirals, and antifungals known to mankind, I'm still getting daily fevers and headaches. and they're still not any closer to a diagnosis. The doctors said this morning if I get a fever again today, they may send me for an MRI and full body scan to see if they can find an infection anywhere and barring that, I might have to get another lumbar puncture, which I'd really rather avoid since I'm due for a bone marrow biopsy next week anyway and either on their own is enough to make my back really sore for the better part of a week, so together, I might as well be an invalid...

Anyone else get any news on their diagnoses?

Oh God, that sounds so awful and scary for you, SP.  :\\\'( I hope they find something out soon.

So it's a week on since my readmission, and despite having huge doses several times a day of the most powerful antiobiotics, antivirals, and antifungals known to mankind, I'm still getting daily fevers and headaches. and they're still not any closer to a diagnosis. The doctors said this morning if I get a fever again today, they may send me for an MRI and full body scan to see if they can find an infection anywhere and barring that, I might have to get another lumbar puncture, which I'd really rather avoid since I'm due for a bone marrow biopsy next week anyway and either on their own is enough to make my back really sore for the better part of a week, so together, I might as well be an invalid...

Anyone else get any news on their diagnoses?

Oh love, that sounds awful :/ I hope they find something soon and you wont have to have the lumbar puncture.

I have a really high number of extra heart beats according to my heart monitor test, they're not sure why, I'm waiting on my heart MRI.

So it's a week on since my readmission, and despite having huge doses several times a day of the most powerful antiobiotics, antivirals, and antifungals known to mankind, I'm still getting daily fevers and headaches. and they're still not any closer to a diagnosis. The doctors said this morning if I get a fever again today, they may send me for an MRI and full body scan to see if they can find an infection anywhere and barring that, I might have to get another lumbar puncture, which I'd really rather avoid since I'm due for a bone marrow biopsy next week anyway and either on their own is enough to make my back really sore for the better part of a week, so together, I might as well be an invalid...

Anyone else get any news on their diagnoses?

(((hugs))) I hope they figure it out soon and you don't need the puncture 

Feel so bad for you, SP.  Hope they get it sorted out soon.

I'm so sorry Squirrellypoo!  I really hope you get your diagnosis, and more importantly some effective treatment soon.

Oh god, SP, that sounds terrible... I'm so sorry. I hope they can figure it out.

I'm no closer to a diagnosis. I had been feeling a little bit better, but I am still sleeping SO much. Last night I slept 11 hours. For me, 8 hours is the limit - I don't sleep in. I'm doing this nearly everyday, too... But I felt okay this morning, so I went to work today. I ended up nearly fainting on the train. I could hardly breathe. I was the same when I got to work and a bit nauseus. I ended up staying about 2 hours and then heading home.

My neurology appointment isn't until October 2nd. Ugh. That was with an *urgent* referral, too... I have another appointment with my GP tomorrow. I'm going to ask him to order bloodwork. Does anyone know if it is typical to get bloodwork done the same day like I would in the states? I've told work that if I can get the bloodwork done tomorrow then I won't be coming in...