Water Infection and Treatments (7 year old)

I think in general what the dr was saying probably is true.

In general most kids aren't affected by too much juice, in general most kids can take bubble baths.

However, in general kids don't get UTI's.

So your step dd has a problem that isn't being solved so now is the time to try some new things.  They aren't that hard, they are no big deal and she probably won't notice watered down juice or no bubble baths, but they are worth at shot!

Well DSD is now 8 years old and yesterday was her birthday and she had a horrible pain come on and was crying and screaming.  It was her back right side (suspect kidney) and the older daughter said this has happened before and she threw up everywhere...We called the NHS to talk to them.

They have now put us in touch with PALS and this lady was GREAT!
We now have an appt with DSD GP today at 430 to find out what has been going on.  The PALS lady said a child should not be on antibiotics for this long (6 years - 3years constantly) so first step DH is now on main GP contact and go talk to him.

THEN we will inform the mom we want to be at every appt and have a say in health - if she disagrees we have been told to seek a solicitor.  We are going to play nice and have mom talk with PALS first as they will help.

This is just out of control for such a lil girl to be on constant anti-biotics and no one finding a reason or saying its because of hygiene problems.

Has anyone else dealt with PALS?

Awww, I hope the little girl can start to get some relief.  No idea about PALS other than hearing good things.

  I hope they're able to get to the bottom of this and soon.

Is someone having the "your body, your boundaries" conversation with your DSD? It sounds like she's been getting vaginal exams for as long as she can remember which can create a vulnerability to having authority figures touch her in anyway they want no matter how uncomfortable it makes her feel.

Thanks guys.... The gp today has never seen her but that is her doc for 18months. We are going to the hospital Monday to get dh name on the paperwork, need csa paymentsandbirth cert-done. Then we are making an appt with consultant to get the down low.
She hasn't had avaginal exam that we know of but lots of peeing in a cup. We will know more when we get an  appt :-)
Just want answers and now if we need a lawyer so be it
:-)

So how did it go? Hopefully there were some answers this time. I do have to say that it seems that drinking Actimel or another probiotic drink for a while helps some people. DH swears by it for all sorts of things, including cystitis symptoms, and if she likes yoghurt, then she shouldn't find it too difficult to drink one a day, the strawberry-flavoured ones are nice. Maybe it would help a bit, you never know. Hope it starts getting better soon.

It went ok...considering this GP has never actually seen her.  He did give us who the pediatrician is so we can make an appt to see her.  He is the one that gave us how DH can get access to her records b showing proof of parental responsibility (CSA payments and birth certificate).  He said he has to just go by what the consultant says or big brother would come down on him so he wouldn't comment one way or the other - very PC.  We understood how he had to be PC but got some decent info but nothing concrete. We will wait to get an appt with the other lady.

She drinks water when she is here but says she doesnt drink it when she is at mom's. She will drink the yogurt drinks every morning when here as well but mom doesn't buy them, she told us. 

Right now its all about getting access and having a sit down with the pediatrician and getting mom to speak with PALS if we don't like what we hear or no concrete answers.  If mom doesn't work with us then its time to get legal aspects involved because this has gone on a little to long.

PALS seems great but they deal with the local hospitals and DSD has gone to newcastle for the dye scan so that hospital is out her PALS hands but the doctor is here so hopefully we can get somewhere.

;-)

Hi,

Sorry to step in but constant UTI's but I am a type one diabetic since 4. I have even had a bladder op - to prevent further UTIs but after a few years they came back with a vengance. I do agree check she doesn't have diabetes, lots of water helps and also avoiding acidic drinks/food.  I also use this cystisis cranberry drink that they sell at tesco and boots and that seems to help. A probiotic a day helps. Bathing helps - but no bubble bath etc.. I was advised that many infections are caused by crystals getting stuck in your urinary tracts and backwashing so thats why drinking water is so important and making sure she empties her bladder properly and doesn't hold any back.I also seem more prone to gettingt hem if I walk around barefoot and not wearing slippers. My Mom always told me put on shoes and don't stand sit on cold surfaces as you will get an UTI (many believe its an old wives tale) but for me avoiding this works.

if she's getting back pain, you need to get her back in to hospital now to make sure it's not a kidney infection (which it what happens to untreated UTIs).

my 2.5-year-old has vesicoureteral reflux, which is a condition in which the valves at the top of the tubes between the kidneys and bladder don't function properly, and urine flows back up into the kidneys. this means any UTI has a greater chance of developing into a kidney infection. kidney infections leave permanent, irreparable damage.

she was diagnosed at four months old via a micturating cystogram (catheter inserted into the bladder & dye injected under an x-ray, visible backflow of urine = positive diagnosis). the damage to the kidneys is continually monitored via ultrasound and DMSA scans (radioactive dye injected into cannula in hand, bloodstream carries to kidneys which are then viewed via MRI).

she has permanent damage to the right kidney as a result of two serious infections at three and four months of age.

permanent kidney damage means a predisposition to high blood pressure, so we have to watch her sodium intake quite carefully to keep this in check.

we have lost track of the number of times we've been in hospital. every time she gets a fever, in we go to rule out another UTI. it's extremely stressful for us as parents and for her as a scared little girl, but we have to protect her kidneys.

Please take your stepdaughter into the paediatric a&e and ask them to rule out VUR, for the sake of her little kidneys. she could have serious damage that has never been discovered.

if she's getting back pain, you need to get her back in to hospital now to make sure it's not a kidney infection (which it what happens to untreated UTIs).

my 2.5-year-old has vesicoureteral reflux, which is a condition in which the valves at the top of the tubes between the kidneys and bladder don't function properly, and urine flows back up into the kidneys. this means any UTI has a greater chance of developing into a kidney infection. kidney infections leave permanent, irreparable damage.

she was diagnosed at four months old via a micturating cystogram (catheter inserted into the bladder & dye injected under an x-ray, visible backflow of urine = positive diagnosis). the damage to the kidneys is continually monitored via ultrasound and DMSA scans (radioactive dye injected into cannula in hand, bloodstream carries to kidneys which are then viewed via MRI).

she has permanent damage to the right kidney as a result of two serious infections at three and four months of age.

permanent kidney damage means a predisposition to high blood pressure, so we have to watch her sodium intake quite carefully to keep this in check.

we have lost track of the number of times we've been in hospital. every time she gets a fever, in we go to rule out another UTI. it's extremely stressful for us as parents and for her as a scared little girl, but we have to protect her kidneys.

Please take your stepdaughter into the paediatric a&e and ask them to rule out VUR, for the sake of her little kidneys. she could have serious damage that has never been discovered.

my sympathies, niku. 

Kidney infections are awful. Even harder when you are little and cannot articulate what you are feeling. 

my sympathies, niku. 

Kidney infections are awful. Even harder when you are little and cannot articulate what you are feeling. 

 

Sorry to hear about your little one, Niku. Jenn's in America this week with her DH and the girls, so I'm sure she will see your post when she gets back and follow up on that.

niku...wow so sorry to hear this!
She has had the dye scans and "mom" says kidneys are fine.  We don't buy it. I asked her pediatrician why they didnt do a cytoscopy <sp> to go in and test the actual bacteria to see WHAT they need to fight and he said they don't do it in kids.

You guys are helping me with information and DH and I appreciate it.  We come home tomorrow night and then its time to get with her gastro doc to see WTH is going on.

Jewlz - we didnt bring the kids this time they had school = spring break or summer we are bringing them and I keep threatening to bring her to MY doctor over here to get something accomplished if this pedi doc and PALS doesn't cooperate.

a cytoscopy <sp>

Could anyone detail the nitty gritty of what this involves?  Or PM me?

I'm concerned about being told I only *may* get local anaesthesia. Unless I misheard due to anxiety. Yikes.

MLG: I had it done...I get nervous so I popped a Valium but it was simple and I got to watch it on screen.  No real pain just some pressure.  Camera and biopsy threw your urethra - sounds worse then it is but reading below I see they may be worse but mine was not.  I sat in a chair like the OB/GYN table and they gave me a local and inserted it and I watched.

If you need it done - it might be good news.  This is the only way they found a bacteria holding on for dear life on my bladder wall.  Treated it correctly and WHAM after a 12-18 months of consistent UTI/bladder infections I am done with them *knock on wood*

Feel free to ask away ;-)

http://www.webmd.com/a-to-z-guides/cystoscopy-16692

Mr MLG is fairly sure he heard the consultant say they use a local and only do a general at a later date if there are serious probs getting things where they need to go. If for some reason, they do it anaethesia free, I think I am gonna refuse.

Otherwise, I may need some of that Valium.  I feel sick thinking about it.