Inconvenient Annoyances

My doctor was willing to prescribe full strength cocodamol, so I'm going to give it a try. But I am pissed that they won't fill the muscle relaxer script I had in the US, because it's screwed up muscles/spasms that push my ribs out and make this happen more readily. I'm out of all the meds I came with and it's brutal to have completely unmanaged pain.

Scary too I would imagine. 

For me, it's torsion in my thoracic spine.  I have severe congenital scoliosis.  It's almost stable, but the rib pain tells me that there's very gradual torsion occurring. It causes pressure to build between my ribs and they twist and rub against each other.  Sometimes.  Most of the time I'm 'fine'.

Yep. Know that feeling too (but thankfully if the spasms resolve the twists stop) I don't know if you've ever heard of tethered cord, but I'm like 99% sure it's a piece of the puzzle for me, and one that'll probably never get fixed unless some unmentionable things get much worse. But right now, with my back in spasm and the ribs going out... Everything is getting worse. I'm grateful for the NHS because it doesn't cost an arm and a leg, I just wish I'd seen this doctor first instead of wasting months with one who had no interest in helping (and not surprisingly, is not at the practice anymore!)  In the US I'd have the same hoops, I'd just been through most of them.

Scary too I would imagine. 

It's only scary because it can impact my ability to sleep and work, nothing life threatening from being in pain. (which is why it's not treated very well... It took years to get a combo of meds that worked and didn't make other things much worse.)

It's only scary because it can impact my ability to sleep and work, nothing life threatening from being in pain. (which is why it's not treated very well... It took years to get a combo of meds that worked and didn't make other things much worse.)

Exactly!    Not being able to get relief from pain is awful!  Hope you get things sorted before too much longer. 

Thank you!

Now that you are in Scotland,  you need to start exploring.  I'm having a great time.

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Yes, definitely! Love all the pics you’ve shared!

Hopefully we can afford a car before the end of the year so we can explore. Right now we’re bleeding cash on the renovation of our flat.


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Yes, definitely! Love all the pics you’ve shared!

Hopefully we can afford a car before the end of the year so we can explore. Right now we’re bleeding cash on the renovation of our flat.


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It took me a year of being here before we were able to get a car. Husband hasn't had a car for 8 years!

We are headed to the Cairngorms in 2 weeks for Stuart's birthday. We are staying at a hostel on Loch Insh. (Private room with ensuite bathroom)

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I've got an infected ear. Not an infection on the inside, but on the outside at the top from an ear piercing. It's been really sore the last few weeks and I've had the piercing (a double piercing with a corkscrew going through both holes) for over 10 years and I was ready to be done with it so I took it out yesterday an realised it was really hard and swollen around one of the holes. It's hard to sleep on and has been sore before, but never this bad.

I just made an appointment to get it looked at in a few hours. It's probably not serious, but better safe than sorry. DH had something similar a while back (not from a piercing) and they told him it was nothing, so he's curious if I'll get different treatment.

I've got an infected ear. Not an infection on the inside, but on the outside at the top from an ear piercing. It's been really sore the last few weeks and I've had the piercing (a double piercing with a corkscrew going through both holes) for over 10 years and I was ready to be done with it so I took it out yesterday an realised it was really hard and swollen around one of the holes. It's hard to sleep on and has been sore before, but never this bad.

I just made an appointment to get it looked at in a few hours. It's probably not serious, but better safe than sorry. DH had something similar a while back (not from a piercing) and they told him it was nothing, so he's curious if I'll get different treatment.

Ouch sore ears are the worst! Hopefully you can get some antibiotic ointment and that'll take care of it.

I sneezed and it triggered costochondritis. I can't lift anything without my sternum/ribs being painful. #lifewithEDS

Oh my gawd, this I can relate to.  I don't get pain often, but the rib pain can bite me.  When it happens, I can't lift to do the washing up, my husband constantly makes me laugh which hurts, breathing deeply hurts so I breathe shallowly and feel breathless and don't have any energy to do anything...  it sucks.

Oh yes, my commiserations to you both.  When I get a lupus flare up, the first place it does it is in my rib cage. Horrible inflammation, takes your breath away,sooooooooooooooooooo painful to the touch and to move. Struggle to sleep, to play the trombone, to ride my bicycle.  It's awful. 

We are headed to the Cairngorms in 2 weeks for Stuart's birthday. We are staying at a hostel on Loch Insh. (Private room with ensuite bathroom)

Hopefully this glorious weather we've been having up here stays for you.   Last time I went canoeing in Loch Insh, there was a beautiful osprey nesting and you could get so close.
You will have to go so see the not so wee now, Hamish the polar bear as well.   
We got married on the steam train, so I highly recommend that!!   
Lots of good hill walks and trails around.

Oh yes, my commiserations to you both.  When I get a lupus flare up, the first place it does it is in my rib cage. Horrible inflammation, takes your breath away,sooooooooooooooooooo painful to the touch and to move. Struggle to sleep, to play the trombone, to ride my bicycle.  It's awful.

You surely don't play through that pain...?!  How?  I moan if my husband says something funny (which he always wants to do to cheer me up because I'm in pain...  ).  You are amazing.

You surely don't play through that pain...?!  How?  I moan if my husband says something funny (which he always wants to do to cheer me up because I'm in pain...  ).  You are amazing.

Can be impossible and sometimes I don't play when a flare is bad enough.  Sometimes it's all about standing instead of sitting (or vice versa).  But naproxen usually helps me okay.  I also like those stick on heat pads.

Can be impossible and sometimes I don't play when a flare is bad enough.  Sometimes it's all about standing instead of sitting (or vice versa).  But naproxen usually helps me okay.  I also like those stick on heat pads.

Where would we be without naproxen? 

Where would we be without naproxen? 

Sad.  So very sad.  Like I was 'til I got my little bottle of treasure from the Pass the Parcel.  I'm going to need to top up soon.  I've been trying to pace myself with it, but sometimes only naproxen will do.

Sad.  So very sad.  Like I was 'til I got my little bottle of treasure from the Pass the Parcel.  I'm going to need to top up soon.  I've been trying to pace myself with it, but sometimes only naproxen will do.

Don't forget, you can still get it on prescription here.  And in Feminax Ultra https://www.feminax.co.uk/en/feminax-range/feminax-ultra/index.php

I'm so jealous. I can't take naproxen it interferes with the clot preventing aspects of aspirin.

My husband tries to cheer me up to, or rub my back, and I feel so badly when its causing more pain.

I officially miss my pain meds. Codeine makes me sleepy but doesn't touch the pain, and it's not so sleepy that I can sleep through the pain. Gonna be making use of our second bedroom for a bit so I have more space to get comfy with pillows galore. I have some special ones for taking stress off your back so I'm hoping a few days on those and I'll be back in better shape again. I slept on the bed as a single last night and the cat was obnoxious cuz there was no where for her to sleep at my feet so hopefully with it pulled out she will also be content!