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Topic: Urgent call for bone marrow donors  (Read 9320 times)

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Re: Urgent call for bone marrow donors
« Reply #15 on: January 14, 2012, 10:59:10 PM »
It seems that the story is making its way around Facebook, too.  My SIL just posted a link to the local news report.  I really hope that the raised profile can turn up a match for her.

Yes, I was waiting for the weekend to end and post it. My FB circle tend to be more active during the week.
When I was 5 years old, my mother always told me that happiness was the key to life. When I went to school, they asked me what I wanted to be when I grew up. I wrote down ‘happy’. They told me I didn’t understand the assignment, and I told them they didn’t understand life. ~ John Lennon


Re: Urgent call for bone marrow donors
« Reply #16 on: January 15, 2012, 11:57:26 PM »
I'm not either, I've looked into this and giving blood before :( So sorry I can't be of more help and wish lots of good things for little Ailidh.



We talked it through and the boy has agreed to register in my stead (also because he's really passionate about the idea of saving a life or helping someone out), he's fillin in the online form now. yay :)



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Re: Urgent call for bone marrow donors
« Reply #17 on: January 16, 2012, 10:18:13 PM »
Thanks for bumping this. I just signed up.


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Re: Urgent call for bone marrow donors
« Reply #18 on: January 16, 2012, 10:43:37 PM »
Keeping Ailidh in my thoughts.

I'm already registered; hope they find a match soon!!


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Re: Urgent call for bone marrow donors
« Reply #19 on: January 18, 2012, 12:36:10 PM »
Thanks for all your good wishes guys, I will definitely make sure Leigh sees them and thanks for joining the register and spreading the word. I have not had much luck getting on the register myself - too old for the Anthony Nolan one and the other lot couldn't find my veins to take a blood sample, hoping to try again soon.


Re: Urgent call for bone marrow donors
« Reply #20 on: February 05, 2012, 02:10:35 PM »
Thanks for all your good wishes guys, I will definitely make sure Leigh sees them and thanks for joining the register and spreading the word. I have not had much luck getting on the register myself - too old for the Anthony Nolan one and the other lot couldn't find my veins to take a blood sample, hoping to try again soon.

My DH has completed his sample and sent it back a couple of weeks ago, he's 1/8 Native American so they are out there! Fingers crossed for Ailidh.

I so wish I could join as well, being mixed race I know there's a high demand for those types of donors :(


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Re: Urgent call for bone marrow donors
« Reply #21 on: February 05, 2012, 02:54:45 PM »
I sent off my sample a couple of weeks ago. I'm 1/4 Sri Lankan, so perhaps that'll help someone else find a match.
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Re: Urgent call for bone marrow donors
« Reply #22 on: March 09, 2012, 11:42:15 AM »
Indeed, although it appears that you can somehow initiate the process of registering for the British Bone Marrow Registry at your next blood donation.

I am going to inquire when I go for my next one.

Anthony Nolan programme's age cutoff is 40 years old, which rules me out.

However, the British Bone Marrow Registry appears to accept potential donors up to & including 49 years of age - if otherwise eligible, I might just squeak in on that one.

Just bumping this again...as previously explained, if you are under 40 years old, you can get on the Anthony Nolan register here. But their age cutoff for registration is 40 years old.  It's great if you are young enough for that one because it's as simple as sending a spit sample back through the post to them!

On the other hand, if you're an 'old timer' between ages 40-49 like me and you're also a blood donor as well, you're not too old to still get on the British Bone Marrow Registry (BBMR).  They will take you for registration up to and including age 49 - you just need to be registered before your 50th birthday comes.

Both DH and I did this on Wednesday night, during our regular blood donation.  When we turned up to do that, we told them that we also wanted to get on the BBMR.  Prior to our blood donation, they gave us a little BBMR booklet to read and then we filled out a form with our details & signed it. They took an extra blood sample from us during our donation that was sent off for the DNA tissue typing process & all that.  Eventually, we will receive a letter confirming that we are on the register, and then our details will stay on it (unless we ask that they be removed or unless we have some medical reason arise that they would need to be removed) until we are age 60.

??? Donating blood and donating marrow are two different things?

The process is not terribly different, however.  The most commonly used method of marrow (really stem cell) donation today is much like donating plasma.  At first, I was a little bit afraid about getting on the register because I worried that it would mean definitely going under general anesthesia for making the donation - my SIL did that as a donor for her brother about 10-odd years ago (in the US).

While that is still used in some instances, most of the marrow donations now are done at a place like (or same as?) a blood donation centre with a process much like they administer for plasma donation.  You have a tube hooked up to one arm that takes some of your blood out, stem cells (what you are really donating) are harvested off, then the rest of your bloody stuff is put back into your body via your other arm.  For several days before donation, you will be given injections to increase your body's production of stem cells so that your blood will be very rich with stem cells at the time of donation.  Fascinating!

Anyway, both DH & I will be on the register now.  We may never hear anything, but if we are selected as a match for someone who needs it - we'll be there!  :)
« Last Edit: March 09, 2012, 11:57:42 AM by Mrs Robinson »
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Re: Urgent call for bone marrow donors
« Reply #23 on: March 09, 2012, 03:58:18 PM »
I joined the registry when I first arrived. It's so easy to do and it's good to know you are a potential life saver.

Does anyone know how Ailidh is doing?
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Re: Urgent call for bone marrow donors
« Reply #24 on: March 09, 2012, 04:59:35 PM »
Aillidh is on her fourth round of chemotherapy now, they are trying to keep the disease in remission, and a donor match has not yet been found.
Ring the bells that still can ring
Forget your perfect offering
There is a crack, a crack in everything
That's how the light gets in...

- from Anthem, by Leonard Cohen (b 1934)


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Re: Urgent call for bone marrow donors
« Reply #25 on: March 09, 2012, 05:17:25 PM »
You can follow how she's doing on Facebook: https://www.facebook.com/AMLDonorSearch
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Re: Urgent call for bone marrow donors
« Reply #26 on: April 06, 2012, 09:45:54 AM »
As posted on A's facebook page:

Quote
Okay, all, I have BIG news here to share. 2 cord blood matches, less than perfect but enough, have been found for Aillidh.
Next week, the next step in this long, scary journey will begin, as Aillidh will start testing for the transplant process.

This is just awesome news. I will keep thinking good thoughts for them!!
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Re: Urgent call for bone marrow donors
« Reply #27 on: April 06, 2012, 09:49:29 AM »
Brilliant news! Sending prayers!
The only meaning anything has is the meaning you give to it.       ~Author Unknown

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Re: Urgent call for bone marrow donors
« Reply #28 on: April 09, 2012, 11:13:30 AM »
As posted on A's facebook page:

This is just awesome news. I will keep thinking good thoughts for them!!

This is amazing. So happy for them!  :)


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Re: Urgent call for bone marrow donors
« Reply #29 on: April 09, 2012, 11:55:40 AM »
Hooray, that's great news!

I hope it all goes well!


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