Huh? Why do you think several courts, all of whom have had copious medical testimony, made the decision in the first place to allow Charlie to die? Because he is suffering. Do you think that any sane individual would deny Charlie's parents the right to seek treatment for any other reason? This is the real world, not some Alex Jones conspiracy . It doesn't require specialist knowledge in Charlie's disease to determine that. Courts don't deny the rights of parents unless they have a very good reason, and Charlie's suffering is it.
All of this means nothing to Charlie, except to point out that the American doctor may have an interest in treating Charlie other than altruism. Or he may just be a religious nutter who thinks all life is sacred at any cost.
Who says? You keep saying this, but you have no idea of the relative levels of medical expertise involved.
That's ridiculous. Society does this all the time. We insert our judgment every day regarding parents who are abusive, or simply don't put their child in a car seat.
Of course he can. The judge doesn't have to cure Charlie himself, he simply has to decide if the benefits of treatment offered by this doctor outweigh the amount of suffering Charlie endures and whether that is likely to get better.
Quite Frankly, this Doctor might well testify that this treatment has a %10 chance of increasing Charlie's muscle control and be completely correct. In real life, I think this is more or less what he is saying. He also might testify that as a Catholic, he believes that Charlie should be able to fight indefinitely and that's why he thinks this treatment is worth it. This is conjecture, but a reasonable possibility.
The doctors from GOSH may testify that Charlie has massive brain damage that won't be cured by any treatment and the American doctor might agree .
In that case, Any decision would be simple to make. It's obvious that the treatment, even if successful would do very little. Weighed against continued suffering , it's a no brainer. No advanced understanding of medical testimony required.
Did the London doctors say he was in pain or is what they said that they felt he was suffering? Did their lawyers say pain, or did they say suffering?
Because the physical evidence - brain scans - show definitively that he is not experiencing pain.
If the court believed there was pain, and suffering is the consequence of that pain, then that is a misapprehension and upends all of the decisions to date. However, that goes to show the judge was incapable of interpreting the brain scan for himself and as a result was misled, no doubt unintentionally.
The London doctors may have believed he was in pain, despite irrefutable evidence to the contrary. However, their primary position is that a blind deaf baby hooked to a respirator and feeding tube, where they believe nothing now or in the future will substantially improve the quality of life, is suffering because he has to live that way. Pain is not a central point of that argument.
You are attacking this doctor's medical judgement and questioning if he's got an ulterior motive based on speculation that he's catholic or somehow linked to a fundamentalist pro life movement? Look, if you're going to question his motives, you cannot come with baseless speculation.
The guy's name has been out there for a week now. You can research him and his family to your heart's content. The fact is he's the son of Japanese immigrants and far as I can see never been linked to any religion or pro life movement. It's probably more likely that he's agnostic, as a great many research scientists are.
Maybe you are misinterpreting the situation here since this became national news with the pope and Trump getting involved, but that's not when this doctor entered the equation. What happened was the hospital said they saw nothing further they could do, the parents didn't accept that, and they went looking for the foremost expert in the world. Who happens to be this guy, and who happened to disagree with the hospital.
He's the son of Japanese immigrants. He is Harvard and Columbia educated, professor & medical chief at Columbia over brain surgeons and neurologists, plus runs a couple cutting edge labs. He has spent 30yrs focused on this specific small subset of conditions. Following his Columbia educated neurologist father's life's work.
The guy and his team have greater expertise and experience with this condition than anyone in the UK or US. I'm sure there are some who'd claim him a peer, but they are not working for GOSH. If this doctor doesn't treat this patient, there are thousands more he can and will treat. If this treatment works on others, and evidence from prior patients is it will, he'll be in the running for a nobel. If the theoretical follow on capable of curing the condition ends up working, then that prize should be a lock. He is beyond brilliant, and in the balancing of experts it is no contest.
Public policy cases are never about the people involved, they are about what the public policy should or should not be. The people involved are merely a vehicle.
I don't actually care about this kid. I feel sorry for him, but his life or death means nothing to me. If I were the parent in this position, I'd let the kid go, but that'd be my choice. I do care deeply about fundamental individual rights being trampled on when someone else thinks they should be able to decide for others.
You say we insert our judgement for others all the time, such as where parents have been abusive. Yeah. We do. When evidence is presented to the court showing they've been abusive then the state by law can revoke their parental rights.
You see how that works? You have rights. They are absolute and cannot be taken from you by government or society unless you do something, proven by at least a preponderance of the evidence, that would in some limited circumstance revoke that right from you.
Just because some doctors disagree with their choice doesn't mean they get to take that choice away and make it for them. If it is a reasonable choice for Charlie's situation, and if there is a chance of improvement (even if cure or recovery are out of the question) then it is a reasonable choice, then that choice is owned by the parents.
You keep saying 10% recovery of motor function is the prediction if it were to work. That is not true at all. The doctor has said 11-56% chance it'll work. That has been misstated in some sources as 10%. In no case has he said what percentage of motor function might be restored. I've already cited that evidence to you.
So, if your point is to concoct some imaginary situation where some pro life fundamentalist doctor with no special expertise showed up here at the end saying he might maybe possibly be able to restore as much as 10% of motor function with this snake oil he's developed and we can never ever let anyone die cause god says so... well that's 18-layers of bunk. What's the point of that fictional scenario changing the facts to favor your point of - I don't know, winning a discussion with me or whatever it is you're wanting out of this. What's the point of that?
I deal in facts. I take the facts I'm given, be they favorable or not. If new facts come along then I try to figure out if they're right or wrong regardless if they help me or not, then modify my position to reflect the facts as they are. You can't just be close minded to things you don't like. You can't take things you do like as gospel without finding out if they're right or not. And you sure as hell cant hurl fallacy laden speculation at credible evidence to try to balance the scales. I'm not perfect, not always right, and do try to present facts in a way that's favorable to my position, but I try to do that ethically, with intellectual honesty, and reasonably.
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