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Topic: Ok, about 02 saturation levels  (Read 18041 times)

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Re: Ok, about 02 saturation levels
« Reply #90 on: August 27, 2019, 07:25:54 PM »
I think you'd probably get a hernia. I am willing to bet I weight as much, if not more, than you do. ;)


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Re: Ok, about 02 saturation levels
« Reply #91 on: August 29, 2019, 06:39:24 PM »
So, my stress test, which they trundled me off to, came out stellar. Much better than expected for a person of my age. My SATs went UP when I was exercising. I am to have an echocardiogram and be wired up for 48 hours, just in case. There's no reason to go to pulmonology as my SATS were running in the upper 90s during the test, so the 02 exchange is functioning well.

She thinks it's that I have low blood pressure, and perhaps a virus interacted with it to cause those spells. I'm still really tired, though. Although not as tired as a couple of weeks ago. So maybe it is? Apparently low blood pressure is not uncommon in older women.


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Re: Ok, about 02 saturation levels
« Reply #92 on: August 29, 2019, 07:13:20 PM »
Glad they're being thorough given your history, but this sounds promising. Low BP can cause havoc! They did all sorts of tests for MS on me and it was actually low blood pressure.

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Re: Ok, about 02 saturation levels
« Reply #93 on: August 29, 2019, 07:33:41 PM »
Thanks for the update Nan.  It sounds as if they are doing plenty of tests. I hope you continue to improve. My wife’s older sister has low BP, one of the many pitfalls of aging.
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Re: Ok, about 02 saturation levels
« Reply #94 on: September 07, 2019, 05:52:35 PM »
Nan, how are you feeling these days?  Hopefully just a virus and you're starting to get on the mend!
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Re: Ok, about 02 saturation levels
« Reply #95 on: September 08, 2019, 07:12:48 AM »
Yes, thanks, I'm loads better. I did have another episode on Friday, where I just became suddenly overwhelmingly tired and sleepy at about 7:00pm. I literally was so groggy I was having trouble walking down the hall to go to bed. Which I did, and slept until the next morning. But aside from a few minor episodes of feeling faint for a few seconds after finishing up a long walk (or other exercise), it's otherwise very much improved. Supposedly I'm to get a letter to tell me when to pick up a heart monitoring device, but it's been over a week and I've heard nothing. I guess I will phone on Monday. Just to have done everything they recommended.

I am still getting disproportionately tired for no obvious reason, though.  I thought it might be that I was just out of shape after bring cooped up all last winter, but I have been doing some out-of-the-house walking, plus housework, every day now. Sometimes I'm just really wiped out the next day, too.  So I don't know. It still feels like "a virus" but it's been going on for a half-a-year now, so....? At least it seems to be less than it was a few months ago.  ::)
« Last Edit: September 08, 2019, 07:50:26 AM by Nan D. »


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Re: Ok, about 02 saturation levels
« Reply #96 on: September 09, 2019, 02:08:12 PM »
Well hopefully you'll continue on the 'up' then Nan. 

You think it might be something like CFS/ME?
https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

(Not trying to play net doctor, just curious if it fits?)
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Re: Ok, about 02 saturation levels
« Reply #97 on: September 09, 2019, 02:12:56 PM »
CFS/ME is a diagnosis of exclusion, and the biggest factor in that diagnosis vs generalised fatigue is the post exertion malaise. I was diagnosed with it at one time, but EDS causes similar problems. Basically you always pay for any exertion over your usual baseline level, even trying to increase slowly. Like DOMS but for the tiniest thing, and if you do something the next day it's even worse. So one day of activities could leave you in bed barely able to lift your head for much longer. The metabolic changes have been measured in research labs. I wouldn't wish that on anyone!

But to get to that diagnosis a lot of other things need to be thoroughly ruled out.

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Re: Ok, about 02 saturation levels
« Reply #98 on: September 09, 2019, 02:20:39 PM »
Yeah, for sure margo. One of my good friends has had a rough go with ME and at times had to give up work. Just sounds horrifying. 

It took me ages to get diagnosed with lupus because I was pretty atypical and I really had to fight my GP and other specialists at the hospital to figure out what the heck was going on with me.   It's another autoimmune condition that really can be difficult to get a firm diagnosis! 
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Re: Ok, about 02 saturation levels
« Reply #99 on: September 09, 2019, 07:05:07 PM »
Well hopefully you'll continue on the 'up' then Nan. 

You think it might be something like CFS/ME?
https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

(Not trying to play net doctor, just curious if it fits?)

Well, somewhat. It did seem to come on after the both of us had a nasty upper-respiratory virus.  And I do pay the next day if I overdo it. And I do have a lot of muscle pain, but that's pretty much coming from residual nerve damage from the blown lumbar disc.

So, I don't know. But I have more energy than I did back in May, when I first went to the GP about it.

Making candied citrus peel right now, to be dipped in dark chocolate tomorrow when it's ready....  ;D


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Re: Ok, about 02 saturation levels
« Reply #100 on: September 10, 2019, 08:16:13 AM »
Well, somewhat. It did seem to come on after the both of us had a nasty upper-respiratory virus.  And I do pay the next day if I overdo it. And I do have a lot of muscle pain, but that's pretty much coming from residual nerve damage from the blown lumbar disc.

So, I don't know. But I have more energy than I did back in May, when I first went to the GP about it.

Making candied citrus peel right now, to be dipped in dark chocolate tomorrow when it's ready....  ;D

That sounds amazing! I love candied oranges dipped in dark chocolate.


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Re: Ok, about 02 saturation levels
« Reply #101 on: September 10, 2019, 09:47:58 AM »
It's a new recipe. I am not sure it's coming out well - I was supposed to let them "dry" overnight, and then dip in more sugar. Then the chocolate. But in tasting the peel this morning I'm still getting a bitter aftertaste. Not sure if it's the particular oranges or if the recipe needs to be modified. The oranges here are very small, and the recipe said to leave 1/4th of the peel after getting as much of the pith off as possible, and repeatedly boiling and draining them. There's maybe 1/8th of an inch of these peels, and they were thoroughly boiled three times, so.... it might work with the chocolate to counter that. Or it might not. I also have a half a jar of the sugar syrup they were cooked in. The recipe says it can be used on pancakes, etc., but having tasted it I don't think so. Perhaps as a sugar substitute in baked goods, though, to keep from having to throw it away and waste it.

Anyway, I forgot to add to the original post that a couple of months ago I would not have had the energy to do this. I was substantially tired... even peeling a bowl of oranges would have been too much.  So, I'm that much better.


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Re: Ok, about 02 saturation levels
« Reply #102 on: September 10, 2019, 10:17:23 AM »
Did they rule out the Epstein Barr virus Nan? It sounds a lot like my battle with it many moons ago. I'm glad you're much improved and still getting better! Just as a word for the future, if you're so wiped out you can't peel an orange you should be in your GP's office much sooner!

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Re: Ok, about 02 saturation levels
« Reply #103 on: September 10, 2019, 11:38:09 AM »
I don't know exactly what blood tests they ran. Anemia, and liver function for sure, and they came back normal.

I had an episode, come to think of it, like this in 2016 that was diagnosed as Mono, based on the quick mono test results. But later when the much more substantial bloodwork came back there was no Epstein-Barr virus present and no mono blood cells, and so it wasn't mono. It didn't last this long, though. We never did find out what it was.


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Re: Ok, about 02 saturation levels
« Reply #104 on: September 10, 2019, 11:47:11 AM »
Hmmm. Hopefully they can sort you out Nan. 
Glad you're doing a bit better!
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