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Topic: Worse Than An IA  (Read 343534 times)

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Re: Worse Than An IA
« Reply #1650 on: April 14, 2011, 12:39:25 PM »
CW, I'm soo sorry! My heart and prayers have been with you and your family over the last couple days!
~Amberelle


Re: Worse Than An IA
« Reply #1651 on: April 14, 2011, 04:28:38 PM »
Hope your FiL has some relief from his pain, CW.  Sorry to hear what you and your husband have had to deal with.


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Re: Worse Than An IA
« Reply #1652 on: April 14, 2011, 04:58:06 PM »
Oh CW, that is the worst!  I'm so sorry.  I hope they get Hospice to help you - or a Palliative Care specialist if he is not ready for Hospice.  There is no excuse for the staff letting him suffer like that.  Feel free to PM me if I can be of help - to bounce ideas off of or to suggest some reading material for you.  Courage and strength to you.
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Re: Worse Than An IA
« Reply #1653 on: April 14, 2011, 05:11:44 PM »
For me, I've had a bit on my mind the past couple of weeks.  It's weird hoping that something is due to a genetic disorder and not something like Alzheimer's:

http://mollymoggs.wordpress.com/2011/04/14/tough-weeks-one-good-day/


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Re: Worse Than An IA
« Reply #1654 on: April 14, 2011, 05:16:02 PM »
For me, I've had a bit on my mind the past couple of weeks.  It's weird hoping that something is due to a genetic disorder and not something like Alzheimer's:

http://mollymoggs.wordpress.com/2011/04/14/tough-weeks-one-good-day/

Oh (((hugs)))
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Re: Worse Than An IA
« Reply #1655 on: April 14, 2011, 05:50:12 PM »
I'm really sorry to both CW & Legs.  Hope things improve.  :-\\\\
Ring the bells that still can ring
Forget your perfect offering
There is a crack, a crack in everything
That's how the light gets in...

- from Anthem, by Leonard Cohen (b 1934)


Re: Worse Than An IA
« Reply #1656 on: April 14, 2011, 06:14:59 PM »
Oh CW, I'm so sorry.  I really hope they can do something for your FIL and at least get him out of pain.  It sounds agonizing just reading it.

Legs, I hope it isn't alzheimers!


Re: Worse Than An IA
« Reply #1657 on: April 14, 2011, 07:23:21 PM »
Thanks.  I don't think it's Alzheimer's because he has never picked me up from the airport.  Trains, sometimes, but the only time my parents picked me up from the airport, it was my mom driving. So this couldn't have been a memory from the past.  Plus, he obviously remembered I was in the UK.  It could have very well been a dream and he woke thinking it was real. [edit: I might be totally off with this and that Alzheimer's suffers end up having totally made up false memories, but if I am wrong, please don't tell me.  I am trying not to think about this getting worse and how my sister is going to handle this along with her 8 kids.  The doctor might know more, so for now, this is what I am telling myself.]

There are a couple of things it could be with Fxtas being the first likely thing.  Second likely is his statins which can sometimes cause confusion for people taking them.  I guess I am more than anything worried for him worrying about it.  I feel bad for him realising that he might not be able to rely on his mental faculties 100% or that he might think it is something like Alzheimer's.  He was a fairly active guy until about 8 years ago, and since then he's lost a lot, including his driving licence.  

« Last Edit: April 14, 2011, 07:27:27 PM by Legs Akimbo »


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Re: Worse Than An IA
« Reply #1658 on: April 14, 2011, 09:32:20 PM »
Oh no, CW, I'm so sorry for you and K. That sounds terrible. Watching people slowly spiral down is one of the worst experiences imaginable. I'm here for you if you need me. Just give me a call!  :-*


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Re: Worse Than An IA
« Reply #1659 on: April 15, 2011, 05:32:36 AM »
Legs and CW I am so sorry to hear about your troubles.

I hope that FIL get some relief from his suffering.   :(  You can always call me if you need an ear!  I'm back in the UK on Tuesday. 
"It’s life. You don’t figure it out. You just climb up on the beast and ride." - Rebecca Wells


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Re: Worse Than An IA
« Reply #1660 on: April 15, 2011, 11:00:38 AM »
Thanks everyone...Yesterday was a nightmare - they were going to move him and then didnt but now in his own room drugged to the hilt.  The predict this weekend he will slip away as he is drugged.  I appreciate the support and area to vent.

Legs - It sucks being so far away and I send my huggs to you!


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Re: Worse Than An IA
« Reply #1661 on: April 15, 2011, 11:03:27 AM »
I'm so sorry Legs and CW.   I hope things improve for both of you and your families.  :(
"It is really a matter of ending this silence and solitude, of breathing and stretching one's arms again."


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Re: Worse Than An IA
« Reply #1662 on: April 15, 2011, 12:57:23 PM »
We've had another employee pass away today.  I didn't know him, but its just so sad and heartbreaking to hear these things, the 4th person in 4 months from here.  My thoughts are with his family and friends. 
I've never gotten food on my underpants!
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Re: Worse Than An IA
« Reply #1663 on: April 15, 2011, 01:07:11 PM »
CW -- Oh, poor guy. So sorry for all of you. That sounds like they want to do the syringe driver that my daughter had. It's not so bad as it sounds -- you just get a continuous input of pain meds. Somebody does have to be on the ball to top it up though! Doesn't sound like they're even checking up on him much -- don't blame you all for being mad.  >:(
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Re: Worse Than An IA
« Reply #1664 on: April 15, 2011, 01:17:23 PM »
We've had another employee pass away today.  I didn't know him, but its just so sad and heartbreaking to hear these things, the 4th person in 4 months from here.  My thoughts are with his family and friends. 

How terrible.  :(

Legs, I hope you get some more hopeful news soon.

CW, I hope your FIL gets some peace & if you are all ready for him to slip away to be completely painfree, I hope it goes as smoothly as it can.  When my mom was dying (not cancer, but a long degenerative brain thing) - she wasn't eating or drinking anything any longer (hydration being administered by IV only, no feeding tube), anyone touching her to do anything was hurting her, she wasn't 'there' anymore other than just weakly physically subsisting...as much we are pained to see them go, sometimes it's the most merciful thing for them.  :(
Ring the bells that still can ring
Forget your perfect offering
There is a crack, a crack in everything
That's how the light gets in...

- from Anthem, by Leonard Cohen (b 1934)


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