Inconvenient Annoyances

I'm with you there! Haven't worked since 23 December; haven't been on a train since then, either. I'm absolutely dreading tomorrow. I want at least another month of laziness!

I'm a teacher, so 16 December was my last day. Back to work today. And my inner clock is completely confused between EST and GMT from my trip... I got almost no sleep last night. 

It's ONLY Monday...I swore today was Wednesday...Missing DH

Pshaw! You're just missing ME!!! 

MrRed5 is back to work and the girls are back to school today...and all still have lingering coughs!  I'm not sure what I'm doing right but so far I've yet to succumb.  Which means I get to sleep on the couch to get away from the coughing/snoring upstairs. 

Another f%&£*ng cold!!!!!

Not inconvenient but just playing on my mind, a friend of mine is flying out to Poland for some experimental/not proven treatment for her MS.

I've donated to her cause (she had to raise about £6k) because if she wants it and believes it will help, then I'm behind her decision, but I worry about whether it's the right thing to do because of potential complications (dangerous ones) and honestly there's no proof that it works....but then if it doesn't help I don't know what else she can try, she's gone from working a full time job and sailing a boat to needing a wheelchair/crutches in less than three years.

I hate MS with the flaming passion of a thousand suns.

Not inconvenient but just playing on my mind, a friend of mine is flying out to Poland for some experimental/not proven treatment for her MS.

I hope it's helpful for her - or, barring that, not detrimental.

Another f%&£*ng cold!!!!!

Not another one for me... but I've got my first of the winter. Ugh.

Having to drive to Leeds any time we need anything big, like furniture, or a tv.  I HATE driving over there, but my special hatred today is given to the Leeds Ikea and it's stupid placement.  Grrrrrrrrrrrrrrrr...

I hope it's helpful for her - or, barring that, not detrimental.

At least she's not paying for it, everyone's chipped in to raise the £6K so I hope the worse that happens is that it does nothing, maybe I am being cynical and it will solve all her problems but I'm just really skeptical, you have to do this expensive scan to see if you're "eligible" and then pay more money for consultations before they will do the procedure and there's no proven link that CCSVI causes MS, in fact many doctors believe MS causes CCSVI blah blah blah.

Anyway, fingers crossed for no complications and fingers double crossed for release from some of her symptoms.

At least she's not paying for it, everyone's chipped in to raise the £6K so I hope the worse that happens is that it does nothing, maybe I am being cynical and it will solve all her problems but I'm just really skeptical, you have to do this expensive scan to see if you're "eligible" and then pay more money for consultations before they will do the procedure and there's no proven link that CCSVI causes MS, in fact many doctors believe MS causes CCSVI blah blah blah.

Anyway, fingers crossed for no complications and fingers double crossed for release from some of her symptoms.

I have been following that treatment for a while in the news. It looks interesting, but I don't think I would fly to Poland and spend all that money to do it. Then again, I'm extremely functional and the other treatments appear to work well for me.

Good luck to her and let me know how it turns out. There are some amazing things unrelated to CCSVI happening in research, so I hope she hasn't jumped the gun.

I have been following that treatment for a while in the news. It looks interesting, but I don't think I would fly to Poland and spend all that money to do it. Then again, I'm extremely functional and the other treatments appear to work well for me.

Good luck to her and let me know how it turns out. There are some amazing things unrelated to CCSVI happening in research, so I hope she hasn't jumped the gun.

She's in a pretty bad state, she was undiagnosed for a long time and she's in her early 30s, she found out about 2 years ago. She didn't respond to steroids and the interferon caused liver issues, she's been told to consider Mitoxantrone but I believe that has big risks as well (I'm not up on this hugely to be honest, so may be getting this wrong)

I'm worried about that too, there's been some amazing breakthroughs in research this last year, really promising stuff backed by proper research centres. I'm just not convinced enough by CCSVI that I think it would be worth the potential risk to her health when a cure could be just around that corner but there's no way I'm going to tell her that, she's not stupid, she knows the risks and I want her to know she has my support 100% so I'm venting here instead

but there's no way I'm going to tell her that, she's not stupid, she knows the risks and I want her to know she has my support 100% so I'm venting here instead

I am sure that she appreciates that. I would.

I am lucky that so far I have not needed any steroid treatment, because I haven't had a relapse since diagnosis. I am also lucky to have been diagnosed as early as possible (you need to have at least 2 relapses in order to be diagnosed, and I have had 2). And most of the MS treatments available are preventative. Fate was on my side, throwing me DH when I was only 12. I would still be suffering in the dark if I lived in the US - but that is for another board/thread.

I am sure that she appreciates that. I would.

I am lucky that so far I have not needed any steroid treatment, because I haven't had a relapse since diagnosis. I am also lucky to have been diagnosed as early as possible (you need to have at least 2 relapses in order to be diagnosed, and I have had 2). And most of the MS treatments available are preventative. Fate was on my side, throwing me DH when I was only 12. I would still be suffering in the dark if I lived in the US - but that is for another board/thread.

People telling me my bypass was going to kill me drove me up the wall, you can’t live your life for other people. You’ve got to do what’s right for you, even if it hurts some people you love.

I shall stop moaning how Friends killed the modern sitcom then as it did at least one amazing thing!

People telling me my bypass was going to kill me drove me up the wall, you can’t live your life for other people. You’ve got to do what’s right for you, even if it hurts some people you love.

People condemning my life choices never actually makes me change my mind. It just frustrates me and makes me dislike those people. It happened when I chose to date this one guy from England.

I shall stop moaning how Friends killed the modern sitcom then as it did at least one amazing thing!

V happens to hate Friends now, and never watches it! haha

My IA:  this stupid niggling cough.