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Oh MeShell! That sounds awful. As chary asked, any updates? Any time there were new symptoms I went straight to my GP. The bigger deal you make and the more times they see you, the quicker they will get you in to see a neurologist. (That's how I felt anyway.)

That sounds really scary, MeShell. What's going on with your referral? Are you the waiting list? If it's getting worse, can you get bumped up?

I've called the hospital twice to see how close I am getting to getting an appt. But no news. They just keep saying I should be seen within 4 months of referral...which should be about the 6th of October but they are trying to get more urgent referrals in..I said well I was sent as an urgent referral..she said yes but there more urgent cases then yours...made me feel rather special!!!

I suppose I should go back to the GP I have been keeping a list of day to day happenings it's 4 pages long!!! I feel like such a hypochondriac....hubby has been brushing it off not in a bad way but a way to keep me from getting over anxious..but I can now tell his concern is growing..he doesn't let me lift a finger..

I suppose I should go back to the GP I have been keeping a list of day to day happenings it's 4 pages long!!! I feel like such a hypochondriac....hubby has been brushing it off not in a bad way but a way to keep me from getting over anxious..but I can now tell his concern is growing..he doesn't let me lift a finger..

I actually thought that I was a hypochondriac for years. My mom used to tell me it was all in my head (I think because she was even more scared than I was). I was actually happy after my diagnosis after the first couple of weeks, just because I knew that I wasn't crazy! I would definitely take all of that to your GP. I hope that you get some answers soon... *hug*

MeShell, has your doctor done a full panel of vitamin deficiencies? I've seen similar symptoms to these on Bypass forums, and it is often related to severe vitamin deficiencies in certain areas, such as Vit B12

Here's a run down of some of the neurological conditions that can occur after Bypass surgery, it's maybe worth talking to your GP about them? Or seeing if you can see your original surgeon?

http://www.livestrong.com/article/135457-neurological-complications-bariatric-surgery/

MeShell, has your doctor done a full panel of vitamin deficiencies? I've seen similar symptoms to these on Bypass forums, and it is often related to severe vitamin deficiencies in certain areas, such as Vit B12

Here's a run down of some of the neurological conditions that can occur after Bypass surgery, it's maybe worth talking to your GP about them? Or seeing if you can see your original surgeon?

http://www.livestrong.com/article/135457-neurological-complications-bariatric-surgery/

This was the first thing she did to rule out vitamin deficiencies..I'm on B12 shots every three months along with taking B12 drops and D3 drops every day. The last set of test showed no shortage in anything....

MeShell, I think princesslemons's advice is good - keep at that GP! The squeaky wheel gets the grease!

(hugs)

Really sorry to hear. 

When I first moved here I had a rough time getting in to see a specialist, and I even had previously diagnosed conditions that needed looking after and needed someone to write me my medicine scripts (the GP didn't feel comfortable without the specialist input).  I had poorly controlled symptoms and every day was a challenge, but kept being brushed off and told others were more urgent.  I finally broke down crying on the phone one morning and that afternoon, got a call inviting me to make an appointment.

So, lesson learned from that was, as chary said, the squeaky wheel gets the grease.  Do not let them forget you or brush you off.  Keep on them; they don't understand how much this interferes with your life - only you do.  And unfortunately with some of these doctors, you have to stand up for yourself, even when poorly.

Loads of hugs; hope you get in to see someone ASAP!!

MeShell, sending you a big old. Okie hug!  Wish there was something I could do to help,,,when DH was diagnosed with Parkinson's he was a bit like you,,went to the GP who couldn't really give him a definitive answer,,so John saw the neurologist as a private patient,,at that time it cost about £150, but it was money well spent...he got his diagnosis and was transferred back to the NHS where he was under the same neurologist (go figure, lol).  Have you considered going private?

Do hope you get an answer soon,,,xx b

My thoughts were similar to the others--I know I've periodically managed to push up on the waiting list by being urgently clear about how bad things are getting.  Some tears, if you are feeling that way, may not hurt.  I would strongly emphasize that you are collapsing and falling down stairs now and make it clear that you are (sorry to use this language--just wondering if it might help) now becoming a danger to yourself and are concerned about serious injury.  It might help the referral to become more urgent--whatever that means.

I'm so feeling for you.  It's ridiculous that it's taking this long.

I really feel for you as it sounds like your GP is not taking your symptoms seriously. I agree with the other posters who advise keeping on at the GP, and/or seeking a 2nd opinion from another GP in the practice.

But, if you have another fall, please take yourself straight to the ER. Once you are actually in the hospital and describe your symptoms they should hopefully investigate on the spot.

But, if you have another fall, please take yourself straight to the ER. Once you are actually in the hospital and describe your symptoms they should hopefully investigate on the spot.

I was thinking the exact same thing. I'm so sorry that you're having so much trouble getting a proper and timely diagnosis. Lots of hugs and prayers to you that you get the information you need asap! xx

Thanks everyone..xxx I'm in the middle of this HUGE event...I am out every morning dead early and not getting home till gone 9.. So far so good..

Once I get this one out of the way I will go back to the GP..and get her caught up on all my newer symptoms....will keep you updated..x

MeShell your GP is NOT taking you or your symptoms seriously, request a change of GP or go to A$E the next time you have a fall, explain all your symptoms.

This is a disgraceful, couldn't care less attitude from GP, who are overpaid idiots in my op anyway, I know because I nearly died a few years ago, due to a doctor not being all that bothered to come and visit me while I was seriously ill with low blood pressure due to Norovirus infection, took her 5 hours to take the 10 minute walk to the flat and see me. The Medical centre ended up getting an angry call from my Endocrinologist. Hope you get checked out soon ((((hugs)))

I made it thru the BIG week...and it was a success...phew...although I am absolutely shattered..I was leaving the house much earlier than I was used to and not getting home till after 9pm all week, which is not my norm..I am usually home by 4:45...

Anyways came home yesterday to an appt letter with the big cheese!!!!!!YEAH...finally....appt is Oct 4 at 14:40...so everyone pray, cross fingers or bless something that I'm not fluffed off and that he takes this all seriously....

Well done you, MeShell! 

I'm so sorry how much you've been going through - and hope you find out something soon & start getting whatever treatment & care that you need.  Everything crossed for you.  You know I've messaged you on FB before about some input on your symptoms -- if you ever need anything or want to talk or chat or anything, I'm usually easier to get ahold of on FB, get in touch anytime, hon.