Inconvenient Annoyances

Argh matey! Avast ye landlubbers!


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I hope my comment didn’t seem insensitive.  I’m in Spain and on the sangria.  I’m one who tries to find the “fun” in sh*t situations.  Can be awkward if you don’t know me.  😂

I'm so sorry to hear that Rick. is there a specialist you can see urgently for a second opinion? I hope the inflammation comes down quickly! UV related to ankylosing spondylitis has to be treated differently than other types, so I hope they are also checking for autoimmunes.

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I hope my comment didn’t seem insensitive.  I’m in Spain and on the sangria.  I’m one who tries to find the “fun” in sh*t situations.  Can be awkward if you don’t know me. 

Not insensitive at all! Please pass the sangria! If it does happen, I fully expect you to come up with creative eye patches! Mmmm sun, sand, sangria........PIRATES!


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I'm so sorry to hear that Rick. is there a specialist you can see urgently for a second opinion? I hope the inflammation comes down quickly! UV related to ankylosing spondylitis has to be treated differently than other types, so I hope they are also checking for autoimmunes.

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Thanks Margo, I will try to get a second opinion before going extreme. But I’ve been fighting this for years now and it’s just gotten worse, and incredibly painful.


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I have UV, Ankylosing Spondylytis (AS) and Ulcerative Colitis (UC). AS and UV in remission since 2014 but only achieved by taking anti-tnf (Simponi) monthly injections. UC very severe and so far not responding to much including oral roids and various other concatenated immunosuppressive meds. Now taking Humira (instead of Simponi), seems to be working. I have only ever known UV sufferers achieve remission through such meds and never through long term use of eye drop roids which can cause glaucoma as you're finding (or so it sounds). The Drs need a kicking here, this is obvious stuff. Sorry to hear it's being such a problem for you.

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But I’ve been fighting this for years now and it’s just gotten worse, and incredibly painful.

I was going to ask if you were in pain.... you have my utmost sympathy.  I poked myself in the eye with a sharp stick once (accidentally when gardening) and I can safely say it was the most painful thing ever. I just wanted to rip my face off...
Did they give you something strong enough to handle it?

I was going to ask if you were in pain.... you have my utmost sympathy.  I poked myself in the eye with a sharp stick once (accidentally when gardening) and I can safely say it was the most painful thing ever. I just wanted to rip my face off...
Did they give you something strong enough to handle it?

Ibuprofen


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Ibuprofen


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Shut up! That is ridiculous.

At least get yourself some Nurofen Plus. It's marginally better than just plain ibuprofen.

And I hope you get some relief soon.

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Ibuprofen


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No!

Ibuprofen


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Dr sounds useless... prescribing someone with one autoimmune condition an NSAID is asking for trouble. Longer term, suggest you consider changing Drs.

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Captain Rick. You could go all Johnny Depp though and get dreads and grow a really long beard. 

Hopefully the pain improves soon!  I wonder where the nearest second opinion is around here. Probably have to go to the central belt. 

Captain Rick. You could go all Johnny Depp though and get dreads and grow a really long beard. 

Hopefully the pain improves soon!  I wonder where the nearest second opinion is around here. Probably have to go to the central belt.

Yeah, after searching it seems that I have to go south for any second opinion. No independent ophthalmologist here. Then the question becomes can I afford it.....of course the other option isn’t terribly appealing. I could do pirate! But if it comes to that..... I want that parrot!


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I have UV, Ankylosing Spondylytis (AS) and Ulcerative Colitis (UC). AS and UV in remission since 2014 but only achieved by taking anti-tnf (Simponi) monthly injections. UC very severe and so far not responding to much including oral roids and various other concatenated immunosuppressive meds. Now taking Humira (instead of Simponi), seems to be working. I have only ever known UV sufferers achieve remission through such meds and never through long term use of eye drop roids which can cause glaucoma as you're finding (or so it sounds). The Drs need a kicking here, this is obvious stuff. Sorry to hear it's being such a problem for you.

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My husband was recently diagnosed with ankylosing spondylitis, he also has Crohn's and possibly MS... He finally got the neurologist appointment for January. He was supposed to have gotten a letter to get it last March...

He can't start any medication until they decide if he has MS or not. I'm freaking out a bit...

My husband was recently diagnosed with ankylosing spondylitis, he also has Crohn's and possibly MS... He finally got the neurologist appointment for January. He was supposed to have gotten a letter to get it last March...

He can't start any medication until they decide if he has MS or not. I'm freaking out a bit...

We are here for you Lyonaria!! None of us go through tough times alone. You have family, friends, and UKY FAMILY. I’m here for you....


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My husband was recently diagnosed with ankylosing spondylitis, he also has Crohn's and possibly MS... He finally got the neurologist appointment for January. He was supposed to have gotten a letter to get it last March...

He can't start any medication until they decide if he has MS or not. I'm freaking out a bit...

A lot of the more powerful meds (anti tnf biologics) can cause or worsen MS. If he hasn't got MS then that's probably their first port of call. Active AS is incredibly painful really debilitating and, coupled with IBD makes for a nasty combination.

The biologics really worked for me with AS. I haven't had so much luck with UC so far but it's early days for Humira. I was on Simponi for years but actually developed UC on it. I used to get regular bouts of UV too and was frequently at the eye clinic. Luckily, biologics put a stop to UV too.

People get v scared of biologics unnecessarily. They're amazing drugs and very powerful. We're very privileged in being able to have them in the UK under the NHS as they cost thousands per injection. There is a small personal cost in that you catch every disease known to man. This is why i am not a fan of kids and avoid them at all costs!

My next step with UC is Remicade infusions if Humira fails. After that it's surgery time for colon removal. At least I have that option with UC. I genuinely feel for the Crohnies. Have a look at the Crohns and Colitis UK Facebook forum. Amongst the occasional bickering and toilet bowl photos, it can be quite useful. Best of luck.



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