Yeah, I kind of worry about "on the fly" decisions. Which I do understand may have to be made. They are doing the best they can. It's a horrible position to be put in.
However, 12 years ago I was told I had only a 3 out of 5 chance of making it five years and was advised to consider putting my affairs in order. Shortly thereafter I made a "miraculous" recovery and have been basically healthy, aside from a cold every year, since. So, I don't know if I had a truly miraculous recovery, I was initially mis-diagnosed, or a combination of both? That was in a time when I had a say in my treatment, I made the decisions.... So having decisions about my life made by someone who doesn't know me, and doing them on the fly without being able to consult next-of-kin, is REALLY unsettling. I think I'm glad we both also have private insurance. However, given the scope of this, it may not matter. It would not be different in the USA. Unless I was wealthy. When it would.
I just am glad the NHS has almost none of the Daughter's or my medical histories on file.