Worse Than An IA

This is continued from a post from IA....

Basically I had my first episode of extreme fatigue since my diagnosis yesterday. It was very bad. I spent 14 hours in bed and I still feel shakey. It was also very terrifying to feel so weak while everyone else, who were between 10-30 years older than me, were absolutely fine.

Well, I wrote that my SIL's boyfriend commented on a facebook status I put up. My status was "M is very frustrated that her body isn't working the way that it should." He replied "It was working just fine when you were eating xmas goodies at [MIL]'s house." He went over for an hour shortly after I got up yesterday, before it hit me fully. My best friend (who spoke to me last night when I was in bad shape)
"she has MS...

i don't think that's really a joking matter unless she initiates it."


She has just IMed me to say that he sent her a private message. This is word for word what it says:
"I was not joking, but dont want a long thread on MS, She has very mild MS and i have seen her for my own eyes, she was fine
And i bet yr a Yank ?"


My heart is pounding and I am shaking. I am so upset. I already know what kind of person he is, and thus should not be surprised. But I still can't believe that someone would think I am FAKING symptoms. I was so upset about the fatigue - it's the first time I've ever felt like that - but I told DH I didn't want to tell anyone initially, because I don't want people to think I'm just using it. And he said they know when I'm joking and when I'm serious, and that I've been really strong so far. And then someone says something like that.... I didn't know anyone could even think things like this...... I just..... I have no words.

This is continued from a post from IA....

Basically I had my first episode of extreme fatigue since my diagnosis yesterday. It was very bad. I spent 14 hours in bed and I still feel shakey. It was also very terrifying to feel so weak while everyone else, who were between 10-30 years older than me, were absolutely fine.

Well, I wrote that my SIL's boyfriend commented on a facebook status I put up. My status was "M is very frustrated that her body isn't working the way that it should." He replied "It was working just fine when you were eating xmas goodies at [MIL]'s house." He went over for an hour shortly after I got up yesterday, before it hit me fully. My best friend (who spoke to me last night when I was in bad shape)
"she has MS...

i don't think that's really a joking matter unless she initiates it."


She has just IMed me to say that he sent her a private message. This is word for word what it says:
"I was not joking, but dont want a long thread on MS, She has very mild MS and i have seen her for my own eyes, she was fine
And i bet yr a Yank ?"


My heart is pounding and I am shaking. I am so upset. I already know what kind of person he is, and thus should not be surprised. But I still can't believe that someone would think I am FAKING symptoms. I was so upset about the fatigue - it's the first time I've ever felt like that - but I told DH I didn't want to tell anyone initially, because I don't want people to think I'm just using it. And he said they know when I'm joking and when I'm serious, and that I've been really strong so far. And then someone says something like that.... I didn't know anyone could even think things like this...... I just..... I have no words.

M.... I am shocked and absolutely disgusted by his comments.  You poor thing, as if you didn't have enough to deal with already. Mild MS?! What a D-Bag!!

You're doing so well, and you've shown such strength in the face of all this, that he could say that first thing, let alone the second is absolutely shocking.

Don't let ignorant, small minded, idiots like him let you feel bad or upset for a single second, don't give him that power, you know you're a thousand times better. There will always be people like him, but it is not a reflection on you, but a terrible reflection on him.

No one of reasonable intelligence or empathy would ever think you could fake anything, let alone your illness, you're one of the most lovely and genuine people ever. I'm seriously annoyed for you at this guy!

Maybe your lovely DH could have a word with his Sister.

*hugs* Thanks, M. I shouldn't be surprised. But I can't help it. I can't believe anyone could think these things... Even him. We lived with this man for 5 months, and he came out with some horrible comments... But this is just worse than I could ever expect of anyone... I am just in shock and horror.

My husband is livid and has already sent his sister a text message. She has said nothing... That hurts worst of all.

How awful. I would be unfriending and blocking this guy straightaway.

How awful. I would be unfriending and blocking this guy straightaway.

I did this as soon as I recovered from the initial shock.

He is a jerk. I've known this for a long time. He is constantly putting down my SIL, who is a beautiful person inside and out. She is my closest friend here, which is why a comment like this from her boyfriend (even though I don't particularly like him) hurts even more. And we still have not heard from her... I'm guessing she's gone to bed.

 Princesslemons that's awful  

Autoimmune diseases are no joking matter.

That guy sounds like a bastard.

I hope this flare eases up soon, another one doesn't come on, and you're feeling better for your trip home. 

You're always going to get that with some people.  Sorry you're sort of related to a jerk.  Hope you feel better soon.

My heart is pounding and I am shaking. I am so upset. I already know what kind of person he is, and thus should not be surprised. But I still can't believe that someone would think I am FAKING symptoms. I was so upset about the fatigue - it's the first time I've ever felt like that - but I told DH I didn't want to tell anyone initially, because I don't want people to think I'm just using it. And he said they know when I'm joking and when I'm serious, and that I've been really strong so far. And then someone says something like that.... I didn't know anyone could even think things like this...... I just..... I have no words.

I saw his comment on FB and was flabbergasted myself. I'm sorry you have to deal with him being a jerk, unfortunately we can't pick our family (or whom our family members date).

If you're on good terms with your SIL, perhaps she'll have a word with him, or if not perhaps Vincent could when you're away.

I hope this flare-up passes quickly and you have a lovely visit with your family/friends.

I did this as soon as I recovered from the initial shock.

He is a jerk. I've known this for a long time. He is constantly putting down my SIL, who is a beautiful person inside and out. She is my closest friend here, which is why a comment like this from her boyfriend (even though I don't particularly like him) hurts even more. And we still have not heard from her... I'm guessing she's gone to bed.

I'm so sorry you have to deal with this.   

Princesslemons that's awful 

Autoimmune diseases are no joking matter.

That guy sounds like a bastard.

I hope this flare eases up soon, another one doesn't come on, and you're feeling better for your trip home. 

I saw his comment on FB and was flabbergasted myself. I'm sorry you have to deal with him being a jerk, unfortunately we can't pick our family (or whom our family members date).

If you're on good terms with your SIL, perhaps she'll have a word with him, or if not perhaps Vincent could when you're away.

I hope this flare-up passes quickly and you have a lovely visit with your family/friends.

Thank you.  Luckily it wasn't a relapse. The fatigue happens as a result of the damage done to my myelin sheath (which protects the nerves), making it take longer for the nerve signals to be received by various parts of my body. So, my brain is working a lot harder even though I'm doing the same things everyone else is. Thus - fatigue. It's a weird exhaustion that takes over your entire body... I've been fatigued from it before, but never this bad. It was my fault for way overdoing it on Boxing Day. But as long as I try to rest up during my visit I should be okay. I just have to take it a bit easier.

As for him, he's a major jerk. I can't even express with words here how much of a jerk he is. There would be too many *s, it would be unintelligable. We've heard back from my SIL, but she thought he was joking. We sent her the message he sent to my friend and haven't heard from her again.

Thanks to everyone for your comments. They have helped my enraged state quite a bit. Too bad I'm flying tomorrow and now I'm completely wired from this entire incident. 

It never ceases to amaze me how horrible people can be to others.  Joking or not, it was completely over the line, and I hope your SIL rips him a new one for it!

What a jerk.

Mild MS, sorta like that mild cancer or kinda pregnant.  As someone else said- what a D-Bag!!!  Stay strong, and don't let the d-bags get you down. And I hope you enjoy your trip home and some Taco Bell.

Don't even let this loser get you worked up anymore. He is obviously a fool and will one day get what he deserves. Meanwhile, like Sarah says, enjoy your trip home and have fun spending time with your family and friends, who seem very supportive of you. ((HUGS))

What a jerk.  Hugs to you Princesslemons. 

Hugs to you too Jewlz.