Princesslemons:
Urgh, mild MS? What a load of BS if I've ever heard one
It's similar to some comments my mom has been receiving from my aunt (her sister) who lives with her (she moved in with my mom literally a week or so after I moved over here). My mom went for one of her many doctors appointments as they finish sorting out her antibiotics and oxygen--she's on oxygen when she sleeps and goes out since she gets really out of breath and really tired quite easily due to one lung doing the job of two (or attempting to, anyway).
She went for one appointment and was asking the doctor when they thought she would be back to her 'normal' self--he said it would take time, that she needs to listen to her body and let it heal as it needs to, and not to push anything. My mom then told my aunt this, and then they got into an argument since my aunt thinks my mom needs to be 100% back to her normal self and going out and doing all this junk that she did before she went into hospital--and in the argument my aunt said 'I bet you liked it when they said that' in regards to them telling my mom to pace herself and let time take its course. Basically, she implied that my mom was milking her illness to keep low and stay home.
The hilarious thing about this is, my mom isn't really doing anything different than before all of this. The only thing she really can't do is walk for long distances without having to stop and catch her breath, and she's a bit embarrassed to go outside with her oxygen tanks (except for her doctors appointments and antibiotic treatments). It's not like my mom is using her illness to stay off of work or anything, since she's on disability to begin with, and she's been slowly going back to her normal life (i.e. cooking meals, cleaning the house, etc). She just has to do it more slowly than normal, but according to my aunt it's just an excuse to be lazy or whatever.
Basically, things like that and what he did to you, M, is disgusting. Cancer, MS, all those things are extremely serious and to imply that you're faking it or whatever is infuriating. I think my mom is going through similar things that you are--both of you just want to get on as normal without a whole bunch of people hassling you and making you feel lame, and watching your every move as if you're just pretending so you can do whatever. But y'all also want to be allowed to be weak when your bodies tell you they need to be without being accused of using it as an excuse for something.
Sorry for the wall of text, but that sort of ignorance is extremely disrespectful to what you're going through. I don't imagine he'd find it hilarious if he was the one who couldn't get out of bed--and being the same age roughly as you, I'd be terrified if I was so fatigued I couldn't really do anything (though it'd be scary to *anyone* I'm sure, but like you said, when you're 'young' you want/feel like you need to do more even when your body is telling you no).
If he ever says anything else about it, and about you 'appearing fine', I would ask to see where his medical degree came from in order for him to make such a judgement. Does he not understand the nature of autoimmune disorders? My husband has one, and most days he is perfectly fine and goes on like normal, but then there's times where things flare up and he just has to lay low and stay at home and ride it out (with the help of his doctors of course). I'm sure you'll have the same, where one day you'll be feeling fine and the next you'll be so weak you can't get out of bed, and it'll sometimes get worse before it appears to get better, but I wouldn't expect someone like him to be able to really comprehend something like that
And like sarahjoyhappy said, enjoy your Taco Bell, I'd kill for some right now since I have a cold and can't really taste anything else
And enjoy your family as well, I know how much you've been missing them lately
Jewlz:
I can't imagine how it must feel to get that news, especially being so far away from where she is
. All the best for her, and you and the rest of your family *hugs*
